Wednesday, June 10, 2009

The Fighter

  Kaden is doing real well so far.  He lost some weight but that is normal for any baby.  Today he weighed 1 pound 9 ounces.  He is all skin and bones.  They had him on his tummy in a little ball and it was so dang cute.  He pulled his ventilator tube out yesterday morning and had to have it put back in.  Strong little guy.  Rusty was there when it happened and said it was kinda scary.  He is back on photo therapy for his jaundice because his level yesterday was very high but they lowered it from quadruple to triple lights.  Preemies are born with an area in his heart that is not closed yet and sometimes they have to do surgery to fix it but Kaden is responding well to medicine and that may be all they need to do.

Jacquie is doing well as can be expected.  Rusty has been off work and he has the ability to keep her spirits up.  He tends to keep us all laughing as well and he is such a great part of our family.  They actually went to a movie this evening since it has been almost 4 months since Jacquie has been off her feet.  I sat with Kaden at the hospital while they were gone.  I guess that makes me the first babysitter.

Watching him is so mesmerizing.  He is so beautiful.  So tiny.  I just want to reach in there and touch him and it's so hard not to.  I don't know how Jacquie goes without holding him.  They say she probably can within the week.  His skin is still not developed all the way and touch does not feel good to him so Jacquie and Rusty's touch is limited. They can put their hand on his head and his feet and that is how he feels comfort.  His eyes are not open yet.  I never thought about it before but they are not developed enough.  It reminds me of puppies, they will slowly open.  It will be interesting to see them  and what color they will be.  It's kinda weird to see things develop that usually develop before birth.

7 comments:

jen said...

If it makes you feel any better, Heidi had that PDA ligation surgery when she was a few days old, and, as scary as it is for parents, those pediatric surgeons are the BEST. Truly. As are the NICU nurses, as you're finding out firsthand. She has the scar on her back to prove it!
Ever need a shoulder, give me a call.
Praying for you all.

Cindy said...

Were we ever foolish enough to think that once they were adults we wouldn't worry about them as much? Love ya, your family, your girl, and your grandbaby. GRANDBABY! Admit it you are a grandma. Be honored by the name.

Denice said...

just catching up on your blog. i am so glad you have this blog and so glad you are taking the time to write it all down. do you know there are sites you can upload to and print and bind the blog? so cool. i am so glad your new little grandbaby is doing so well. the power of prayer.

Meredith Ferrin said...

wow! what a special little guy....i loved your comparison of kaden to a little puppy....so true! What a neat honor to spend time with him and watch him grow and develop. I hope all continues to go well and please keep us updated!

michele sharpy said...

Your notes made me cry because I cannot be there to meet Kaden yet. When I helped deliver Jacquie (!)it was enough of a miracle, I sure wish I was there now....boo hoo

Taylor Anne Vail said...

what a sweet little guy. Your family is in our prayers and will continue to be so.

The Cluffs said...

what a lot you guys are going through. it is a struggle, but the prayers of many are with you and that little baby. keep us updated on kaden's condition.